Experiences of Families Who Care for Respiratory-Dependent Children

Meer over het boek

The book delves into the experiences of five mothers caring for children who require home respiratory support, highlighting the challenges they face after hospital discharge. Four key themes emerge: varying parental knowledge about their child's condition, insufficient post-discharge information, poor communication from health professionals, and inadequate support systems. The study emphasizes the primary caregiving role of mothers and advocates for a designated key worker to enhance communication and coordination between families and healthcare services, ultimately aiming to improve the care experience.