Prism: Shedding Light on Life with Duchenne

Meer over het boek

In this refreshingly relatable memoir, David K. humanizes the experience of life with Duchenne muscular dystrophy. His many poignant recollections act as a prism, making the invisible visible, and demystifying the reality of having this neuromuscular disease. Among his many experiences:• Being a “normal” college student: living away from home, staying in a dorm, learning independence, partying • Confronting his early mortality at the age of 13, and being entirely unprepared to deal with it• Kissing a girl for the first time at age 19, and realizing that women could indeed be interested in someone with a severe disability • Learning he needed a ventilator the hard way: nearly suffocating when out with friends, and rushing home in a panicDavid does not sugarcoat anything, nor does he spout a lot of empty inspirational rhetoric. All he does is peel back the curtain and show what it’s really like to live with a disability.